How do you love yourself!

Deloris Dockrey

How do you love yourself! 

When you are told that you are worthless, no good and lazy.

When you are told that you are fat and useless.

When you begin to internalize people’s opinion of you.

You rise above people’s opinions and you rely on you.

You see the beauty in your life.

You see the joy of your family.

You experience the love of family and you revel in their warmth.

You reaffirm that you are kind and caring and that you support your family.

You know you are always willing to help others.

You know you share your gifts and talents.

You see the beauty in your life.

You experience the love of your son.

You see his love for you and

You know love!

You begin to reflect the love you see, and

You begin to experience that love for yourself.

You begin to see the joy, the courage, the heart that is you.

You begin to love you! You are love!

My name is Deloris. I am a survivor of early childhood sexual trauma, and I am a woman living with HIV.  At 59 years old, I have become very reflective of my journey to find joy in my life. In 1994 at age 35, my hope was shaken when I found out I was HIV positive. I had not considered that I was at risk for HIV.  After 24 years, it is still very difficult to express how shaken, devastated and angry I was with that diagnosis. I felt that all my hopes were dashed. I have come to learn that my desire to live and the deep desire to raise my son sustained and strengthened me. HIV changed my life! My now deceased mother told me that when life gives you lemons – you make lemonade! That lesson has sustained me over the years. I have learned to deal with my self-loathing, low self-esteem, guilt, and shame. I have addressed these stressful feelings through mental health therapy, family, social support and poetry. It has been through my writing that I have discovered more about myself, who I’d like to become and what I needed to do to get there. Understanding the disease was crucial to my acceptance of living with HIV.  

There are so many experiences in our lives that make achieving self-care arduous.  When I reflect on my life, I have struggled and I have survived. But it was easier to take care of others, to be helpful and to make sure others are getting the care they need than to take care of myself. In my journey I have learned lessons that have assisted in my progress toward true self-care. I affirm that I love me, spending alone time reading and writing works for me, meditation and praying helps to build my spiritual core, and participating in spiritual retreats help to build a community of support. I share this piece for Love Positive Women as a testament to my journey, with the hope that it can inspire others. 

LOVE POSITIVE WOMEN

LOVE POSITIVE WOMEN (LPW) happens each year between February 1st–14th. It is a global project, conceptualized in 2012 and implemented in 2013, raising awareness about women and girls living with HIV using social media to link local grassroots gestures of love. Using Valentine’s Day as a backdrop, Love Positive Women creates a platform for individuals and communities to engage in public and private acts of love and caring for women living with HIV. Going beyond romantic love to deep community love and social justice, Love Positive Women is call to action. It requires participants to spend time reflecting about how they, as either a woman living with HIV or an ally, will commit to loving women living with HIV. Through action, change can be made. Working from a place of strength, Love Positive Women focuses on the idea of interconnectedness, relationship building, loving oneself and loving one’s community. By starting from a place of love, there are endless ways to build strong communities. While Love Positive Women is active primarily between February 1st–14th, it remains a symbol of how the world can be different throughout the year. Groups in over 45 countries have participated in shifting lives and making a difference through acts of love. LOVE POSITIVE WOMEN is an ongoing project established by Visual AIDS artist member Jessica Whitbread

For Love Positive Women 2019, Luv Til It Hurts will participate by celebrating women artists living with HIV in our community by featuring one each of the 14 days. We are excited to honor our ladies!

In turn we encourage everyone in our networks to do their own intervention in their communities and share the love on social media #lovepositivewomen @lovepositivewomen <3

$oropositiva

Piece: $oropositiva
Collage on greaseproof paper and serigraphy
30x 40

Micaela Cyrino, 30, is a visual artist and militant of sexual and reproductive rights, blackness, and HIV / AIDS, in her artistic work and in her participation in groups such as Coletivo Amem. She graduated in Visual Arts from Santa Marcelina University. (São Paulo, Brazil)

Luv ’til it Hurts

   1.

Across generations of continents
What do it mean to be haunted?

by a virus. A bluegrass
grandma in Sparta, Tennessee died today;

So did Ntozake Shange.

I wonder is it was they knew each other?
Ntozake and grandma?

the yellow / the red / the Asian pacific islander /
the poor poor white / the black / the trans girl /
the doula / the woman / the social worker / the rich /
the nuyorican / the new yawker /the southern belle /
the global south /Brasil / the brown-black / AMEM
and thank you /the activist / the artivist / the Zion / the poet /
the visual artist / the scholar / the writer / the shunned /
the convener / the  loved / the forsaken

Ain’t it
   ?

a Universe of Us?

got queer children in common?

Somewhere in the beveled glitter of rainbows
A proximal history melts us into lemon drops

America’s punk daughters and sons sure know how to tie a not

How else to cut down a noose?
cept with the knife’s edge of a fem queen’s heel
and an icon’s death drop

tonight Love ‘til it Hurts launched
right where we landed simulcast in this
historic nyc LGBT Center Auditorium
on 13th Street just west of Seventh Avenue South 

breathing the unrequited ash suffusing St. Vincent’s biosphere

in this west village five to six block radius
a repurposed hospital building ain’t never lose it’s mission
here lies a fertile field endlessly pregnant with ghosts

Where NYC’s AIDS patients had flooded-in parched
for something like water & comfort on the hapless occasion
of their tsunami life and death

what do it mean to be haunted by a virus?

Tonight there is a Taipei hiv-positive gay boy in here
lending us an innervision. A love petri dish is bubbling over
in his terrified eyes

He’s going back home soon; His country everywhere
infectious with stigma

the medicine men don’t make pills for that.

Kai’s momma don’t know yet his secret.
Her son a host.

His soul-force, warm porcelain, nurses a kindling tide
swayed with tenderness and courage and rage
and grief and joy we can all touch
when we meet him

he has tasted here in nyc some portion of his soul’s own freedom
the call. we hear it.                    don’t u?

its in the blood its in the blood-water
earnest and quiet and true

It hurts to spring out of a cage smiling
It hurts to bounce too hard against a Tree

In the photos he has shown us.
He is calling us home

He is a gift.

He does not quite know how powerful he is yet.

2.

row after freckled row in this ancestor scented auditorium
every where in view an horizon of all-american fauna
sat blowing in the fall wind

we watch at the intersection
wave after seceding wave
come in

ntozake’s fresh unencumbered ghost
laughs in panorama with all the traffic lights

sitting to my right a tsunami flew in from Edmonton

a boy burning himself to the bone
body fluid born too hot
for a working class town

finds a hungry pandemic after its stolen
the lion share of his bedfellows and wet-dreams
left him spurned already in a hotbed
of First Nation descendants and poor immigrants

a psychic says his former lover in a past life must have been a dandy
from the high hills of america’s west coast

AIDS always had such fashion sense
Here today gone tomorrow
baroque Baudeliere bad ass.

world turned upside down
negative [survey says] is a positive health outcome
if only it were so simple in these blood rich oil fields
reverse transcriptase trenches mine with the nuclear
parochial sanctimony of a moral majority
plus and minus everybody else

the top’s bottom
the bottom’s top
the infected and the un-infected
the bound and the unbound
the buttoned down and the unbuttoned
the prude and the wanderlust
if only our kind came readied to nurse
each ours very own chance at living?

meanwhile Kai’s photos stream behind us un-announced
powerful enough?

[A prayer becomes an affirmation]

to tell their own story

to teach us?

[if even by omission]

the history of unintended
consequences

how silent and unbeknownst a virus haunts what it hunts
to occupy the hearts and minds of its prey

This project warrants no apology
the activists job is never done.

Perhaps the best ones wrastle
the too tight tendons
of their own too tidy towns

their own dissembled selves
born biting at the bit
kicking the stables

cut their teeth earn their chops
cross the stigma-shorn frontiers
imbued to their own origins

to discover the wealth
of what it could mean to survive
a pandemic before it kills you.

Whether you have it or not
Whether you will get it

or not

To find a cause, greater than oneself,
throbbing with its own life
beyond the boundaries of caste
and circumstance

to lay among the shunned and the dying
the survived and the surviving
the besieged and the otherwise well off
the castaway and the unmoored

in search of what is possible of a self
inside the catacombs of a womanist’s theory
breathing still at Union Theological Seminary
right where it was found

in new york city
inside the bodies of black women
who had to have known
long before they got there

the evidence of their own being
must be for all civilization
a salvation unto itself.

3.

Now are you gonna start dressing like a girl?

Some questions bury their own answers
inside the ferment whisper of unasked breath.

She was born inside the navel concave of a question
marked for transition from the beginning

a Filipina girl born into someone else’s body
run up the west coast Interstate 5 like a spine
run up the American dream like a tourist with tangled roots

immigrant parents born knowing tourism must be a fantasy
long before it is a business.

A brother in Redding California asks his teenage sibling an answer
to his own redwood question

Before he outs him for talking to a boy

Why
?

so seismic a proposition to ask a world for: an understanding.
boys and girls are born whole and un-belonging

these parts
they are shells

we can take them on
we can take them off
for the sake of our selves

we are quite simply who we feel we are

Malaya Malaya

Rehearse with me the freedom wolverine-knit
into the soul–spine of that name

She is a brook delicate and frothing
There is fertility in her bones
Like any fresh water river she is born caretaking
A sea of west coast salmon yelping against the tide

Malaya Malaya

She is an undertaking

her own precious project
She intends on becoming the name of herself
Over and over again

feminist courses are no panacea
each intersection
corset a millstone to its own precipice

we who believe in freedom               can not rest
we who believe in freedom              can not rest               until comes

Malaya Malaya

for women of color

Malaya Malaya

there is no way made for us
we must make our way
each every time

Kai too is the beginning of an answer
To Malaya’s own unasked question

To see herself?

freed inside the swelling shadow of her own story
To bear witness how her light must-will,
so numinously, contend with that darkness

A heart pricked too young by a virus
for the which she was offered no viable
first or second language

with which to negotiate an actionable line of defense

PrEP PEP
Had not quite begun their rally

A whole body of stories snagged between
the too-titan lexicon of an aeon. AIDS HIV unspelling
their own death sentence

whole acronyms still sneezing mouth uncovered
their nubile stigma into a generation’s consciousness
before and after they

re-imagine themselves
a desiccate and crumbled fiction
beneath the hard-packed weight
of their own histories

There is a new way.

We who believe in freedom cannot rest
We who believe in freedom cannot rest until it comes

these young ones are making it up as they go
the olde warrior’s stories are not enough
for these young bloods

navigating a new virus
in a haint town
in a new time

they will teach us how to read the next chapter
they will teach us how to listen.

AIDS 2018 Journal

“It is just another coin in the pouch. Sometimes it comes out heads; it’s a blessing. Sometimes it comes out tails; it’s a curse”. — Frederick Weston.

As I have struggled at the many crossroads in my life, I have never thought one day I will embrace such thing that I used to disregard in my everyday life, and even carry it go on a journey for staying alive. To continue my research on HIV/ AIDS, I traveled to the city which is 12 hours different from my motherland, selling myself to explain my story and my project often and often, like the endless stage. There were happiness and disappointment in this unpredictable magical script; sometimes I even feel like I might have already seen it all, but of course, I have not, since I am merely a human being who is trying to find the connection as the lifeline to keep going. It seems like the world did hear my hunger, once again I had the opportunity to visit a new land where I have never been, I flew to Amsterdam for the 2018 International AIDS Conference from the surreal life in New York.

Former sex worker Dinah de Riquet-Bons giving the speech at the opening.


The theme of AIDS 2018 is “Breaking Barriers, Building Bridges.”With the idea to create the bridge to link the right ground, the provider, researcher, social worker, artist, activist, and even the sales around the world who works in the AIDS field, all travel to Amsterdam for this biennial reunion. The 15,000 AIDS delegates from 160 countries take to the halls to share their research, experiences, and insights from the global response to HIV. The opening ceremony was one of the moments that made my sight misty from hearing those who already engage with the AIDS fight for a long time, and of course the voice of the unignorable youth force.

I was fortuned to receive the scholarship’ support for this trip as a young artist/ activist from Taiwan and sharing the room with my case manager Issac. By offering more than 1,100 scholarships, the conference organizers made the conference accessible to people from resource-limited settings, researchers, young people, key and vulnerable populations and community representatives.

Issac is checking the daily sessions on the conference’s app.

The young Filipino American researcher Alex Adia who led the research to the HIV-positive individuals to his homeland Malina. Devmi Dampella and Richa Saivi, the two youth advocate working in the field of sexual and reproductive health and rights at Family Planning Association(FPA) in Sri Lanka and India. Ghaith Ghaffari, a doctor and TV presenter in Baghdad, Iraq. Sophie Ryder-Jones Kortenbruck, my brave “sister” who just started her journey of activism to speak for the female HIV-positive community in Berlin through the broadcast and comedy show. I connected with these beautiful souls through the potluck lunch of the scholarship community, each of us has the different motivation and story to make this connection happen.

Alex holding the postcard of my project Humans As Hosts with the information of Luv ’til it Hurts.
Ghaith Ghaffari and Devmi Dampella.
One of the portrait pieces of Humans As Hosts on the cover of The HIV Howler issue 3.

This opportunity to AIDS 2018 has also made my participation in The HIV Howler possible. One month after I submitted my scholarship application, I received the invitation from the lovely publisher/editor Jessica Whitbread and Anthea Black, to present an in-conversation piece with the Manuel Solano by the coordinating and editing of Theodore Kerr. The conversation not only shows both of our vulnerability as an artist, and also the living situation in both of our surrounding. This artist newspaper recruited the arts from the poz artist in different nations, it first published at the conference in Amsterdam and now in Toronto.

The lovely couple Jessica and Anthea, they dedicate to create AIDS activism in multiple ways.
The provider of olvg and his friend.
A discussion between the researcher from Hongkong, China and a doctor and artist from Taiwan.
Midnight Poonkasetwattana and Inad Quinones Rendon from apcom.

In this 7-days inspiration, most of my magical moment happened at Global Village. It was way beyond my imagination that how the artist/activist from different nations deliver their faith and necessity. The Global Village space itself is a big platform for bearing the multiple dialogue and magical coincidence. I remember that unexpected conversation about The HIV Howler, Humans As Hosts and Luv ’til it Hurts with the local health community center olvg, the excellent photobook “Invisible Lives” topic on the key population of HIV in different regions by Colet van der Ven and Adriaan Backer, the nice meeting with Carué ContreirasCarué Contreiras to learn the current situation and his story in Sao Paulo, The discussion for future collaboration with Midnight Poonkasetwattana and Inad Quinones Rendon from apcom. And most importantly, to engage more with the Taiwanese community. At this once in a lifetime chance, we spoke about to create the event for World AIDS Day event in Taiwan, and how can we develop the workshops for the providers to erase the stigma and rejection against the HIV-positive individuals. The conversations and networks that I gain during the period of the conference reveal the new page my journey as an activist and the beginning of this newborn AIDS campaign: Luv ’til it Hurts.

Colet van der Ven and Adriaan Backer, the author and photographer of Invisible Lives.

Letter Report

Hi all this is a report that the musician that worked with me producing and thinking the music of my last completed worked named “Fantasia casi soneto después de una lectura de dan(c)e” sent me after going to ArteBA Focus (version of the big art fair in Buenos Aires done by the same people):

Hi, Dudu, how’s it going?

I was on ArteBA Focus for a while, all right. I give you a brief report: The work was in a plasma TV of acceptable size, but had no headphones, and the environment was too noisy to be heard well with the speakers of the device. Also, when I went, the video had a jump, a line of slight horizontal digital noise, which appeared cyclically and affected everything, video and audio. Still, it could be said that, given the context, the work was “intelligible”, and in fact, I saw several people stop to look at it for a while. Very good photos of you too, I liked them.

The sample, in general ok, although nothing dazzled me: – [

After reading this email this morning I felt like taking this as a chance to say more and to send it to you, curators and people working and deciding about art nowadays.

I am now living in Frankfurt and these pasts days had been the first depressive days I had here.

After being yelled while transporting myself through the city twice, Friday around 8AM and Saturday around 00AM, I decided to create a new sound work called “I love you Frankfurt”, that actually I had this idea way before but now it´s urgent for me to do it. Will be done soon hopefully.

As I am far from my Umbanda Terreiro in São Paulo, I have to appeal to some improvised healing like having a haircut today as I always do when feeling down. Today my haircut was only to leave the knife I have tattooed in my head visible to others. Now I feel cold in my head.

Great haircut to go to my Ausländerbehörde Frankfurt (Foreigners Department) meeting in 20 days! To try to get my visa, not having reached the money I need or either a sponsor who could sign a letter. Yet.

I never forget listening to Cuauhtémoc Medina talking about the meaning of Curatore.: those who used to take care…of money (back then).

But I sold two photos in the art fair! From which I have to discount half from both for the galley (fair) and production of everything (fair). I need now to think how to do to make the money travel from Buenos Aires to Frankfurt. Hopefully a friend will carry the papers for me.

Thinking about this art fair experience I do need to think of doing an exhibition soon, and I do have works ongoing:

I’m waiting for a dramaturge called Carol to come back to Guissen (next to Frankfurt) from Japan (she was at Kyoto experiment) to start a new project I already started here: performative film about a choir that sings problems in German. Their problems doesn´t seem the same as mine problems. I have a lot of ideas already for this, it´s exciting.

And I also decided to continue my blind project video with only sound, with the two amazing persons Luiz Carlos and Paula who are in São Paulo. Something good will come out from this as long as I can still be here to use the studio sound at school!

I also delivered a project here to see if I can get money for it, it´s called Incapazes. In a way it´s about art and care. A tiny for of this film was part of Jessica Gogan´s video about art and care where the curator Ricardo Resende that helped me in the beggining with this project as curator of Museu Bispo do Rosario (the museum that actually helped to get into the hospital as a pacient) I sent already this project for an open call in São Paulo, they didn´t choose it.

I started “Incapazes” last December in a psychiatric hospital in Rio de Janeiro. The material is waiting in my external hard drive and few notebooks, handwritten diaries, and now the project has another layer: doing a field research about art and madness and care here in Frankfurt starting with Heinrich Hoffman and the Sammlung Prinzhorn collection. Finger crossed.

I cried twice this weekend and talked with my lover who is now going back also from Japan to Salvador da Bahia. We talked about HIV and care and love…

And this email is mainly because I´ve been thinking about CARE.

What am I doing?

Today I thought a lot about what Willem de Rooij said in our first class meeting, in a way is like a ritual for him to send a photo of Nancy Reagan with the slogan Just Say No.

We all need to think a little more about care, and this should be translated to what we do. I felt really surprised reading that the city where I studied and grew up and decided to be an artist is or was at list for a couple days “An Art Basel City”. What does this means? I don´t get it. Are they buying the city or renting it? How are they helping there or what is their real interest? I´m curious (not that much reall). But one thing takes me to the other and seeing all those # and my work involved did affected me while thinking about CARE.

And finally: I wanted to deliver “Fantasia casi soneto después de una lectura de dan(c)e” with English subtitles for all of you but seems that I can´t download the program I´m used to use for this kind of work. So I will have to wait for this. Any way, the Spanish version of a work done during 7 months in what seems to be now an Art Basel City, the lovely but weird Buenos Aires FUCK MACRI, LOL:

“The Cure for AIDS is Kindness….”

The Social Practice of Jessica Lynn Whitbread

My community mother, Darien Taylor, was one of the first women living with HIV to do direct action with AIDS ACTION NOW! in Toronto in the late 80s – she’s seen a lot. Darien said that I was a love warrior, and what I advocate for was people being and feeling loved. Which I guess is different than people being accepted because being loved, feeling sexy, being desired, or getting fucked ultimately come with a sense of feeling good and at a deeper level change our quality of life. I had a conversation with a taxi driver in Johannesburg once who asked me if there was a cure for AIDS, I told him yes – kindness. For many people living with HIV and those who are marginalized by ability, age, class, and so on life really sucks sometime and through my projects such as LOVE POSITIVE WOMEN, Tea Time, and No Pants No Problem I aim to change people’s sense of wellbeing at both the micro and macro levels. I believe that role modeling how to be a good friend, lover, family member or service provider has effects that ripple through our communities. People notice. People feel it. I feel it.

LOVE POSITIVE WOMEN is a holiday/movement/project(s) to celebrate women living with HIV in our communities every year from February 1-14th. Basically, people are asked to do something nice for themselves as women living with HIV and/or their communities as friends. These events/actions/gestures are driven not by donors or grants, but by people who actually just want to do and perhaps feel something nice. There is something like 5000+ individuals and about 125 organizations implementing activities each year (which for me is a little mind blowing organizing such a thing with ZERO budget-ha). Communities are incredibly amazing and creative from dance parties and secret talk show giveaways in India, candle making in Nigeria, quilting in Jamaica and Barbados, soap making for trans women in Puerto Rico to card making in NYC. My heart is full of emotion every February as I’m always inspired by what projects people come up with. Most years I do my own person intervention, which usually includes stitching a banner. In 2015, I stiched one for my sisters in Eastern Europe and Central Asia that said “Любите Позитивные Женщин” and took photos of different people in Jamaica, New York City, and Toronto holding it – these were posted on the LPW social media. Within a few days a copy cat banner was made in Ukraine and posted, and then another, and another all in Russian. It was so amazing to actually experience your work having an impact in real time. In 2018 there were about 15 different LPW projects in the region.

Another one of my long term projects is No Pants No Problem. NPNP was a way for me as a young 20 year something year old how to exist as a queer, women living with HIV. Which to be honest, with not many role models is a little difficult. It is rare that women living with HIV are ever depicted as sexy, sexual or queer, especially at that time. So what I did was created a world where I (and eventually others) could explore their sexuality and gender without disclosure being a barrier. In this world we all feel a variety of levels of awkwardness dancing in our underwear, but ultimately realize that we didn’t seem to mind too much when we realize that we forgot our pants at the party the night before (true story of a friend of mine). Working with other artists to create the NPNP experience (such as performance artists: Morgan M. Page, Mikiki, Glam Gam, House of Hopelezz, Kia LaBeija), NPNP is a collective practice that, like most things I do, more about the process than the end result. NPNP has been produced on 5 continents ranging from 50 – 1200+ people. I’m not a size queen in this respect.

I like to work on projects that have longevity and eventually are adapted by others to foster community building, but really most of all, people feeling good. At the core of my projects is myself. They are a representation to things that I often need in my life – so have lots of sex and feel loved I guess.

XO

Coletivo Amem – São Paulo <> NYC

Coletivo Amem is a São Paulo-based artistic collective that promotes festivals, performances and debates focusing on race, class, gender, and public health. 

Coletivo Amem ‘occupies’ São Paulo’s Container Theatre during Virada Cultural 2018.

For the last two years Coletivo Amem and House of Zion (Brasil) have visited NYC during Black Pride and #HouseLivesMatter.

The House of Zion in Brasil came about during a 2016 visit to São Paulo by New York’s Pony Zion.

Statement on Humans As Hosts and the artwork of Kairon Liu

Our DNA, the map of our genetic information (our growth, development, functioning, and reproduction), is 99.9% the same for each and every one of the 7+ billion people living on Earth. That said, while we share common genetic bonds, our social, cultural, and emotional experiences are unique. This duality is significantly addressed by two of the foremost figures in developmental psychology: Jean Piaget (1896-1980) and Lev Vygotsky (1896-1934). The research of Piaget and Vygotsky signified that it is a combination of ‘Nature’ and ‘Nurture,’ that accounts for a person’s development. In other words, while we all have the natural ability to learn and develop, how we perceive the world largely depends on our experience and education.

Being that we are so similar in our genetic makeup, yet different due to our cultural uniqueness, the way we address issues that affect health and well – being can be complex and problematic. For example, one of the greatest stigmatized health related issues of the modern era is HIV/AIDS. The fact that HIV is a stigma among civilization is ironic, because a person who is infected can look and feel perfectly fine and may not even know they have the virus for many years. Furthermore, medical breakthroughs have greatly enhanced the prognosis and care for those infected with the virus. With medicine and regimen, an HIV+ person can live a long and healthy life. In spite of all this, cultural perspectives of HIV/AIDS still discriminate against the individuals living with the virus. Judgemental viewpoints and lack of empathy for individuals living with HIV can be far more traumatic and damaging than the actual virus.

If there is one thing that should be made perfectly clear regarding nearly all physiological concerns, it is that viruses like HIV don’t discriminate and human bodies are ample hosts to these viruses despite a person’s gender, sexual identity, race, or economic status. It is this denial, coupled with sexual and racial biases, that contributes to the greater failure of HIV/AIDS awareness. Society’s struggle to come to terms with the social and cultural issues surrounding HIV/AIDS is clear based on the lack of empathy and understanding for those living with HIV.

While the culture at large is lagging to address these issues, the arts community has had a resounding impact in providing awareness and activism around HIV/AIDS. For example, The AIDS Coalition to Unleash Power (more commonly known as ACT UP) uses visual symbolism and creative expression to stage poignant public protests and interventions (such as ‘die ins’), which call for affordable healthcare and non-discriminatory treatment for people living with HIV/AIDS. Works of visual art by artists such as Hunter Reynolds, David Wojnarowicz (1954-1992), Felix Gonzalez-Torres (1957-1996), Martin Wong (1946-1999), and the artist collective General Idea, symbolize the struggle as well as the resilience of HIV+ individuals and cannot be discussed without mentioning the ongoing pandemic of HIV/AIDS.

Kairon Liu’s Humans as Hosts is a conceptual art series that humanizes a diverse population of HIV+ individuals through portraiture and storytelling. Liu has been communicating and networking with citizens of Taiwan and the United States in order to present their experiences living with HIV and reflect upon how it has affected their social, emotional, and professional lives. The title of the series has both symbolic and literal meaning, which is significant to the thematic perception. To be a host is defined, according to select definitions provided within several dictionaries as:

A. Receiving others as guests. B. A living animal or plant on or in which a parasite, commensal organism, or virus lives.

Furthermore, according to dictionary sources (see: Merriam-Webster), the root of the word host comes from the Latin word, hostia, which refers to an offering, usually of an animal, as a sacrificial victim.

These definitions and the root meaning of host are meaningful in interpreting and discussing Kairon Liu’s Humans as Hosts in both a subjective and literal sense. The subjects of Humans as Hosts assume the role as hosts on a social and emotional level, because by participating in the project, they are inviting the viewer into their personal lives. This hosting process includes their agreement to have their photographs taken, their stories written down, and their intimate items displayed to a public audience (both online and in art galleries). They are all hosts to the virus, although it has affected them in different ways. Their stories, the culmination of interviews conducted by Kairon, are both heartbreaking and inspiring. They remind us that humans have an inclination to survive and persevere even when things around them or inside of them seem bleak. Kairon’s impetus for Humans as Hosts has powerful autobiographical roots, which symbolize the cathartic nature of his artwork. He has expressed this sense of abreaction through the depiction of his alias, a man named “Tree,” who overcomes heartbreak and betrayal to persevere, rebuild his self-esteem, and inspire others to value themselves. This is not just the narrative of survivors, but the story of courageous fighters.

While medical science has made several important advances in HIV/AIDS treatment, individuals who are HIV+ are still victims of ongoing emotional and physical affliction due to the virus. It is because of awareness and activism that the overall condition has improved for those affected by the virus. Both historically and presently, HIV+ survivors have made significant sacrifices to fight for the equal, equitable, and just treatment of individuals throughout the world. As long as the virus continues to live inside of human hosts, these survivors will advocate for humane and holistic treatment. Art is just one of the many ways that activists have presented their condition to the world, however, it may be the most profound medium to inspire social and cultural change in relation to the AIDS pandemic.

Art has stood the test of time. As the earliest recorded form of communication, visual art has endured civilizations and communities across the globe. Because objects of art remain long after the generation that created it, Humans as Hosts will preserve the memory and personal expression of each individual for future generations to observe and reflect upon. However, art’s most powerful function is to serve as an expression and account of the period it is created in, and in that sense, Humans as Hosts serves as a stark and vital reminder of the HIV/AIDS crisis and its effects on generations young and old. Hopefully in the very near future, a cure for the HIV/AIDS pandemic will be realized. When it is, it will be in large part, due to the hard work and personal sacrifice on the part of artists and activists who are humanizing this global condition and raising our awareness, understanding, and empathy for our fellow human beings.

ACT UP and END AIDS!

*** Adam Zucker is an artist, art historian, curator, and arts educator. He lives and works in New York City. Zucker is the founder of Artfully Learning and The Rhino Horn Blog, where he writes about the intersection of art, politics, and education. He has curated museum and gallery shows throughout the United States. For more information on current and past projects visit: https://adamzuckerart.wordpress.com/

IN THE MIDDLE OF THE GREEN:

PORTRAIT OF AN ORAL HISTORY BETWEEN
KARION LIU & THEODORE (ted) KERR

A.
He is an artist and I am a writer. We call each other Kai and Ted. We are both short, cis-gender, gay men. He has black hair. I don’t have hair.  We are from different parts of the world. I am from Canada, he is from Taiwan.  But we both grew up in complicated families where violence was present and we both like cinnamon raisin bagels topped with vegetables. We are about a decade apart in age, with Kai being born after me.

Kai went to school in Taiwan to study photography. I went to seminary to look at ethics. But, we both make work about HIV/AIDS and use oral history as part of our process. We both understand that since no one gets HIV alone, no one should have to deal with it alone.

When Kai asked me if I would do an oral history, with him as narrator, I said yes. I got us a room at the school where I teach; we set a date, and we met.

We both had a cold on the first day of our oral history. Kai wonders if I gave it to him or if he gave it to me. It does not matter to either of us since we are both excited to work together. Before we start recording, we gossip. Kai eats a bagel.

On the second day of the oral history, he brings cough drops and anti-mucus pills. He shares. 30 minutes into the interview I feel tired. I ask Kai if he is also tired; I wonder if the pills have made us drowsy. He says, ‘not really.’ I don’t believe him. 20 minutes later I feel less tired. I always forget that doing oral history can be draining.

During our interview Tree is there, and Tree’s darkside. Tree came to Kai after the HIV diagnosis. Kai was in meditation (at a good friend’s urging) and in that state Kai could feel Tree. Later, Kai began to feel Tree’s darkside. 

So, for the oral history, there were four of us; me in my body, and everyone else sharing Kai’s. In the transcript, the idea of who is talking is confusing. There are no names assigned to what was said. Sometimes, during the interview, I spoke assuming Kai was not answering. Most often answers came in the form of third person from Kai and Tree—seldom did I hear directly from Tree’s darkside. Sometimes I asked who was talking.

B. TRANSCRIPT

In the beginning, I didn’t see… Karion Liu didn’t see Tree as a human form in the image, but I did see … Karion did notice there is a river and beside the river there isa tree but the tree already been cut off, so only the root left there. Karion feels down whenever he sees this vision, and he saw this a couple of times.

Because he just saw the root?

Because it’s pretty evident that Karion causes this. He cut the tree and this is how they understand it. The other image is Karion saw the tree is in the factory and the factory has artificial grass, plant and the tree cut off, someone put it in the middle of the green.

The real tree is put in the fake grass?

Yeah, in a factory, with a rolls-up-and-down gate like at a bodega. It opens automatic, and I see the tree in the middle of the factory, isolated, the gate will be closing down while I am waking up from the meditation. This was after I was feeling better, while Karion Liu’s mental status was getting better.

Wait. Who do you think is talking right now?

Both.

Okay, not a third?

“Not a third?”

Is it a third person? Is it a different being that’s talking right now,not Tree, not Kai?

Yeah, maybe it’s a third person because he is trying so hard to make sure I’m using the right term.  After Karion Liu feels better, he started seeing Tree as a human form, a child beside the river. Then he realized, the river is actually the memory of his life, and it keeps flowing but also as a loop. He saw Tree playing with the river, or maybe just staying still beside the river and touching the water. Karion tried to talk to Tree, so he knocked Tree’s shoulder but Tree refused to turn. I guess that was the only time that Karion sees Tree in human form. And then Karion found out there is a new leaf, a little tree growing on the roof, but recently Karion can’t see any vision about it. I don’t know what’s the reason about it. Maybe it’s because he just too tired to mediate or he is not taking care of both of them well.

C.

Oral history is a relatively new discipline, and as such, has flexibility. One of the coalescing voices of the tradition is Alessandro Portelli, who, in his essay, A Dialogical Relationship. An Approach to Oral History states that when we speak of oral history we are speaking of a historian’s tool, “in which questions of memory, narrative, subjectivity, dialogue shape the historian’s very agenda.”  

Within this broadness, there are some shared ideas. For one, the concept of the interview is vital. Oral history as source and process is about conversation. It is an exchange, and often a series of compromises between what narrators want to share, and what interviewers are aware of or interested in having be part of the record. 

The idea of listening is also key. Portelli himself says, “Oral history, then, is primarily a listening art.”  So much of what I do when I am sitting across from someone is thinking about the layers that are being shared in voice, silence, gesture, action, word choice, etc. I am listening, reflecting, anticipating, crafting, hosting, holding while also trying to  ensure I am not blocking or impeding any expression.

Maybe less obvious, when it comes to oral history, is this shared if not agreed upon idea of narrative. While not always obvious, the narrator and the interviewer are making and telling a story. Sometimes a listener will find something like a single plot, with clear and reoccurring characters, in a finished oral history. But most often the narrative that is crafted and recorded is an assemblage of never-before-shared memories, epiphanies and often-told stories that give shape to a life.

I would not understand such things about oral history, were it not for what I would call my introduction to the feminist tradition through Suzanne Snider at the Hudson Oral History summer school. Through her teaching I was exposed to a method that prioritizes listening, support, and collaboration. I see my job as an oral historian consisting of performing tasks to provide a foundation for the narrator to record for the future an understanding of the past in the present. I make possible conditions of trust and communication for the narrator to be nimble, self-aware, self-reflective, and open to co-creating history with me through the lens of their experience.

That means considering what space, place and atmosphere suits the person and the goals. Sometimes it means “showing up” with a recorder. Other times it is about negotiation, and a lot of back and forth.  Sometimes it is about making sure that’s someone has a chair which accommodates their bad back, sometimes it is jumping through emotional hoops to illustrate I will not be emotionally abusive in anyway.

In the process of interviewing I listen to the narrator for where to go next, based on: what is being communicated (through words spoken and unspoken, and body language); my own curiosity; what I think history needs; and what I think the future might be interested in.  When I am not sure where to go next, I stick to questions that illuminate what was just communicated, or I follow chronology, based on western ideas of time.

Other than that, I don’t have any rules when performing oral history, although I have a few standard questions. Early on I like to ask: What is your earliest memory?  People’s responses provide information I can always follow up on later, such as setting, and how someone saw themselves early on. I hope it also provides an opportunity for the narrator to worry less about facts and more about what images and memories they have long held onto that they want to share.

I also like to ask: Who is in the room with us? Sometimes I clarify what I mean by “in the room.” But most often the narrator will find their own definition. They will talk about guardian angels, and ghosts, or they will talk about future audience or loved ones in the next room. Kai, in his oral history, spoke about Tree and Tree’s darkside. It was a way of preparing me to listen for who was speaking, and an invitation for Tree and Tree’s darkside to feel agency to share and be present.

Often towards the end of an interview, I will ask: is anything you want to say that we have not touched on? I think I learned this from Suzanne. For me this as a last question has resulted in long answers, with new or clarifying information being shared. But most often it results in a big sigh and acknowledgment of what was just shared. I think it is good, and ethical even, to capture the narrator’s experience of the oral history process, if only in the sound of their recorded breath.

D.

If you listen to Kai you learn that he does not have HIV, Tree does. But still, Kai is the one that is made to carry the burden. During the oral history a lot of blame was being placed on Kai. This upset me, so I asked:

Why are you taking it out on Kai when it is not Kai’s fault… HIV is nobody’s fault, or HIV is the fault of the state who doesn’t provide medicine or the…

I was cut off. A combination of Kai, Tree, or Tree’s darkside respond:

I don’t think my concern is only on HIV, my concern is more about… He is supposed to take care of both of us our body…

E.

The oral history Kai and I did together was part of his larger project called Humans as Hosts. He uses oral history (and portraiture) to create conversation and further understanding about the ongoing AIDS crisis, through the lens of people living with HIV. He started the project in Taiwan. He interviewed his friends, and other people he knew, making pictures of them, with them. In these early photographs, faces are obstructed. HIV related stigma is still strong in his home country. People feel they can’t share their status publicly. This is something Kai, Tree and Tree’s darkside understand.

The oral history is integrated to the process of taking the picture. Often objects that appear in the final image, are one mentioned in the oral history. They are done, often together, over the course of a few days spent together. The process of the photo and the oral history are not separate.

Since Humans as Hosts has begun, Kai has included the work in exhibitions in Taiwan and the US, experimenting with how to include the oral histories alongside the portraits. In Taiwan, if I understand correctly, the whole transcript, redacted to protect the subject and others, was available to be read. Additionally, quotes were pulled out and displayed at a table, where visitors could respond. In the US, Kai has created folders, almost like medical files, in which excerpts from the oral history are collected along with images from the portraits.

In both exhibition methods, viewers are being provided multiple ways to know and learn about the person and their relationship with HIV. And in both displays, there is not an attempt to privilege the visual over the written word or vice versa. Instead, there is a belief that we need multiple entry points to ever really begin to get a sense of a person and how they might feel about any specific topic that impacts their lives. Humans as Hosts is a process of co-creating meaning when it comes to HIV, and community, making both through the lens of positivity.

F.

At one point in the oral history I am asked questions about my commitment to HIV, my status, and my sex life. The first question is issued as a statement:  

Yesterday, Kai asked Ted how you would care so much about AIDS work and AIDS fight.

And I respond, knowing that implicit to the question is, why do you care, if you are HIV negative: People assume that if you do AIDS work the way we do AIDS work that you must been living with it.

Or you have certain connection about it.

Yeah and now I have certain connections, but yeah, I don’t have it. I’ve been tested just in case you’re wondering. We’re you wondering if I had been tested? You were? You thought maybe I just was ignorant about my status?

No. I can be the interviewer now? I can be the interviewer now? Okay. My question was have you ever think about how would you feel if you are HIV positive. Have you ever think about it before and after?

Yeah. Yeah, I think about it a lot all the time.

Okay. Has it ever changed?

Yeah. Honestly, there’s times in my life it doesn’t feel inevitable. Does that make sense?

No.

I don’t bottom ; I’m a top primarily. I’ve tried bottoming and so my risk of HIV …

Yes, really low.

Is lower.

Yeah.

When it comes to sex, I’m a bit of a control freak.

What does that mean?

It means that I don’t … It would be hard for me to get HIV at this point.

True. Are you on PrEP?

No, I’m not on prep and I don’t use condoms but I also don’t bottom so I’m at risk.

It’s so funny. Wait. Are you waiting the moment that you got HIV?

No, I’m not waiting for the moment. I think that’s a really good question.

G.

When it comes to life with HIV, there has been many treatment advancements in the last 30+ years, making it so an HIV diagnosis is no longer a death sentence, but can be a manageable chronic illness. Often standing in the way of making that a reality though is stigma and discrimination, that can be felt both from systems and people, but also from within someone’s own heart. It is so hard to not feel guilt and shame when living with HIV. Public health is often rooted in making HIV+ people feel that they are solely responsible for the crisis. This is not true.

In part, to help deal with the ongoing social, political and spiritual crisis of HIV, some friends and I created, What Would an HIV Doula Do?. We are a collective of people from across the HIV response who see a doula as someone in community who holds space during times of transitions and that HIV is a series of transitions that begin long before someone may take an HIV test, and long after someone may go on AIDS meds, regardless of their status. We understand that no one gets HIV alone, so no one should have to deal with it alone, so we attempt to hold space in public, holding institutions responsible for how they are representing HIV, or making space for people to communicate about HIV on their own terms. We find there is still a lot of power in even just naming HIV in public and making space for people to integrate their life story into that of the virus. We hope through representation, familiarity and diversity of voices, HIV becomes more inviting to discuss, and less harmful.

In this way, I see WWHIVDD is similar to Humans as Hosts. Both are about collective responses to HIV, using culture to improve the life chances for people with HIV. And both aim to create community so that people understand that HIV is not an individual problem, but a shared global experience in which some people, often already marginalized, are further burden by the epidemic, while others are allowed to distance themselves through ignorance.

This is something I thought about after Kai and I wrapped up the last oral history session. It was afternoon and the sun had just begun to set, flooding the city with light and a sense of time passing. My tiredness was being held at bay by my gratitude at being witnessed and having a chance to witness someone else. As I walked uptown, I was thinking about how Humans as Host , like oral history itself, is as much about the narrator or the subject as it is about the interviewer or the photographer. Having to deal with the burden of HIV, including the isolation, stigma and discrimination, Kai is doing what he has to do, making community, and forging ahead as host for grief, anger and uncertainty to be shared.

H.

Is there anything … I feel like we should wrap up. How do you feel?

Yeah, we’re good.

Is there anything you wanted to say?

I love you.

I love you; no, but I mean it. I know you mean it too. Okay, should we do a hum before we stop?

Okay.

Okay.

Yes.

Okay, three, two, one.

Ahmmmm.

Ahmmmm.

Theodore (ted) Kerr
New York
October 2018

Theodore (ted) Kerr is a Canadian-born, Brooklyn-based writer, artist and organizer whose work focuses on HIV/AIDS, community and care. He is a founding member of What Would An HIV Doula Do? For more information: tedkerr.club

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